It's been a month since our 3yo's heart surgery began. Last week, she was able to come home, not so much because she was doing better, but because she was doing worse staying in the hospital. With so many alarms, nurses, doctors (& residents) "messing" with her, wagging needles and probes about, her anxieties hit a threshold and she began to do worse. After we bargained to get her home and recover in the comfort of her home, she started to do well again...until this past weekend.
By Sunday, she had developed a 102° F fever, was overcome with fits of coughing and her Oxygen Saturation levels dropped. We took her in to her pedatrician, who deferred to her to her cardiologist, who had her admitted into the Pediatric Cardiac ICU discharge wing, where she was moved to the full PCICU. This, by the way, is at her former hospital where her former surgeon commands. She tests positive for a bacterial infection somewhere about her chest, and the threat of another open heart surgery looms overhead.
The akwardness of facing her former doctor had been palpable and complicated matters, and with this possibility of another operation, she is being moved yet again to Stanford...where she undergo another battery of testing and whatnot. We feel naueous.