2-chamber heart
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We found out several months prior to her birth, and were given 3 options:
- Heart Transplant
- 3-Part Surgery
- "Compassionate" Care.
The later option means you take your child home without medical intervention until they expire 2-10 days later. Until about 20 years ago, this was the only option. The former two options became available in the early 80's. Baby Fae was one of the first infant transplant recipients, although she lived only a few days. We, however, chose the 3-stage surgeries for our precious daughter, and pray every day that we made the right decision. It means that she will live with a 2-chamber heart, and that heart would have to work twice as hard for her.
Her first operation, call the Norwood procedure, was performed at 4-days old and the second stage, called the Glenn procedure, was done at 4-months. I could write reams of copy on all that has transpired through those days, but I shall refrain. Instead, I will share this: We have decided to move her surgical services from her previous hospital (UCSF) to Stanford for another mini-reams-worth of reasons.
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She has this new proceedure planned in the next 2 days. Of particular concern is that she will be on bypass for a signficant ammount of time, and the "goods" are in a rather tricky spot to get at. She is also old enough to understand what is going on.
Although the prognisis is quite good, it still scares us aplenty, and she could certainly use your prayers. So if you sincerely wish to know more, email me and I would be happy to answer any questions and invite you to her care page we have set up. Otherwise I plan to leave short update posts on this as it progresses.
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